Russian Network of People Living with HIV & AIDS
Members of the Board of the Russian Network of People Living with HIV & AIDS


In association with the Elton John AIDS Foundation, the ECPP made two visits to Russia to assess the needs, capacity and viability of the nascent Network of People Living with HIV and AIDS. To ascertain, if, with the right support, could mobilise to become effective advocates for positive change in the life of PWA’s within Russia.

A capacity development programme was formulated in 2002. Since, an office has been set up in Moscow with three full-time staff. The Network is expanding its activities, which include mobilising PLWAs into self-help groups in other oblasts.

Russian PWA network

Since 2001, the ECPP had been in conversation with the Russian Network and had had several meetings in Moscow and at the Barcelona XIV International AIDS Conference, in July 2002.

Within Russia human rights is still a marginal commodity, especially for those people with HIV and AIDS. There is a real fear of disclosing one's status or identity which often dissuades them from seeking professional, social, legal or psychological support.

Bearing this in mind and that the potential need in Russia is greater than that in Ukraine the approach to Russia was seen to be similar (both being ex Soviet in systems) but different allowing for Russia’s size and the lack of political commitment to the issue. Russia currently faces one of the fastest growing HIV epidemics in the world. Since the early 1990s, Russia has experienced a significant increase in HIV infection. While official statistics released at the end of June 2002 put the figure at 201,635, the actual number of people living with HIV/AIDS is estimated to be 5-10 times higher. Vadim Pokrovsky, Head of the Federal AIDS Centre AIDS believes that the real figure exceeds 1 million and the Ministry of Health states the number of those living with HIV/AIDS will reach 5m by 2005. 80% of currently registered cases of HIV involve young people aged from 15-30 years. In the ten regions where prevalence is greater than 200 per 100,000 total population, rates among males and females in this age group exceeds 0.5% and 1% respectively.

The objective of the project

To increase the capacity of the Russian Network to become a self-sustaining organisation.

Expected outcome

It is envisaged that the Network will be able to manage itself, produce its own plans, define budgets, write effective fund-raising proposals, identify and approach fund-raisers, manage themselves as individuals living with HIV and AIDS, and other volunteers, monitor its own work and evaluate its performance and report the same to donors, members and other stakeholders. It will be able to professionalise its advocacy on behalf of PWA’s in Russia.

Achievements to date

The Coordination committee is:

Regional organisations:

The office is at:

5 Ordjonikidze Street
Building 3
Russian Federation

The phone number: ++7 (095) 974 7723

It has appointed two members of staff:

The Web site was set up at: plwha

E mail contact can be made :

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The Patient can be as knowledgeable as the expert, but is uniquely placed to have a holistic view of their condition

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